"What matters most

" A cultural mechanism moderating structural vulnerability and moral experience of mental illness stigma

Larry Yang, Fang pei Chen, Kathleen Janel Sia, Jonathan Lam, Katherine Lam, Hong Ngo, Sing Lee, Arthur Kleinman, Byron Good

Research output: Contribution to journalArticle

Abstract

To understand Chinese immigrants' experiences with mental illness stigma and mental health disparities, we integrate frameworks of 'structural vulnerability' and 'moral experience' to identify how interaction between structural discrimination and cultural engagements might shape stigma. Fifty Chinese immigrants, including 64% Fuzhounese immigrants who experienced particularly harsh socio-economical deprivation, from two Chinese bilingual psychiatric inpatient units in New York City were interviewed from 2006 to 2010 about their experiences of mental illness stigma. Interview questions were derived from 4 stigma measures, covering various life domains. Participants were asked to elaborate their rating of measure items, and thus provided open-ended, narrative data. Analysis of the narrative data followed a deductive approach, guided by frameworks of structural discrimination and "what matters most" - a cultural mechanism signifying meaningful participation in the community. After identifying initial coding classifications, analysis focused on the interface between the two main concepts. Results indicated that experiences with mental illness stigma were contingent on the degree to which immigrants were able to participate in work to achieve "what mattered most" in their cultural context, i.e., accumulation of financial resources. Structural vulnerability - being situated in an inferior position when facing structural discrimination - made access to affordable mental health services challenging. As such, structural discrimination increased healthcare spending and interfered with financial accumulation, often resulting in future treatment nonadherence and enforcing mental health disparities. Study participants' internalizing their structurally-vulnerable position further led to a depreciated sense of self, resulting in a reduced capacity to advocate for healthcare system changes. Paradoxically, the multi-layered structural marginalization experienced by Chinese immigrants with mental illness allowed those who maintained capacity to work to retain social status even while holding a mental illness status. Mental health providers may prioritize work participation to shift service users' positions within the hierarchy of structural vulnerability.

Original languageEnglish (US)
Pages (from-to)84-93
Number of pages10
JournalSocial Science and Medicine
Volume103
DOIs
StatePublished - Feb 2014

Fingerprint

mental illness
vulnerability
immigrant
discrimination
mental health
Mental Health
experience
capacity to work
Delivery of Health Care
narrative
participation
system change
Mental Health Services
deprivation
Psychiatry
Inpatients
social status
coding
health service
rating

Keywords

  • Chinese
  • Culture
  • Health disparities
  • Immigrants
  • Psychosis
  • Stigma
  • Structural
  • United States

ASJC Scopus subject areas

  • Health(social science)
  • History and Philosophy of Science

Cite this

"What matters most : " A cultural mechanism moderating structural vulnerability and moral experience of mental illness stigma. / Yang, Larry; Chen, Fang pei; Sia, Kathleen Janel; Lam, Jonathan; Lam, Katherine; Ngo, Hong; Lee, Sing; Kleinman, Arthur; Good, Byron.

In: Social Science and Medicine, Vol. 103, 02.2014, p. 84-93.

Research output: Contribution to journalArticle

Yang, Larry ; Chen, Fang pei ; Sia, Kathleen Janel ; Lam, Jonathan ; Lam, Katherine ; Ngo, Hong ; Lee, Sing ; Kleinman, Arthur ; Good, Byron. / "What matters most : " A cultural mechanism moderating structural vulnerability and moral experience of mental illness stigma. In: Social Science and Medicine. 2014 ; Vol. 103. pp. 84-93.
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abstract = "To understand Chinese immigrants' experiences with mental illness stigma and mental health disparities, we integrate frameworks of 'structural vulnerability' and 'moral experience' to identify how interaction between structural discrimination and cultural engagements might shape stigma. Fifty Chinese immigrants, including 64{\%} Fuzhounese immigrants who experienced particularly harsh socio-economical deprivation, from two Chinese bilingual psychiatric inpatient units in New York City were interviewed from 2006 to 2010 about their experiences of mental illness stigma. Interview questions were derived from 4 stigma measures, covering various life domains. Participants were asked to elaborate their rating of measure items, and thus provided open-ended, narrative data. Analysis of the narrative data followed a deductive approach, guided by frameworks of structural discrimination and {"}what matters most{"} - a cultural mechanism signifying meaningful participation in the community. After identifying initial coding classifications, analysis focused on the interface between the two main concepts. Results indicated that experiences with mental illness stigma were contingent on the degree to which immigrants were able to participate in work to achieve {"}what mattered most{"} in their cultural context, i.e., accumulation of financial resources. Structural vulnerability - being situated in an inferior position when facing structural discrimination - made access to affordable mental health services challenging. As such, structural discrimination increased healthcare spending and interfered with financial accumulation, often resulting in future treatment nonadherence and enforcing mental health disparities. Study participants' internalizing their structurally-vulnerable position further led to a depreciated sense of self, resulting in a reduced capacity to advocate for healthcare system changes. Paradoxically, the multi-layered structural marginalization experienced by Chinese immigrants with mental illness allowed those who maintained capacity to work to retain social status even while holding a mental illness status. Mental health providers may prioritize work participation to shift service users' positions within the hierarchy of structural vulnerability.",
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