Qualitative study of patient consent for health information exchange in an HIV clinic

S. Raquel Ramos, Suzanne Bakken

Research output: Chapter in Book/Report/Conference proceedingChapter (peer-reviewed)

Abstract

Introduction/Background: Health information exchange (HIE) is the secure, electronic transfer and/or accessibility of clinical data among healthcare providers. In the United States (US), the consent process for participation varies state to state. New York State (NYS) mandates written patient consent. The purpose of this study was to examine workflow and perceptions related to obtaining HIE consent in an HIV clinic. Methods: We used contextual inquiry to observe the HIE consent-related workflow of four registration clerks for a total of 4 hours on two weekdays and subsequently created a flow chart and sequence model diagram. Clerks were also interviewed and the resulting narrative data were coded into themes. Results: Observational and interview data suggested that patient privacy/confidentiality/trust, high volume workflow, and multiple competing demands affect the patient HIE consent process. Conclusions: Additional qualitative data needs to be gathered from the perspectives of patients and clinicians about the HIE consent process.

Original languageEnglish (US)
Title of host publicationNursing Informatics 2014
Subtitle of host publicationEast Meets West eSMART+ - Proceedings of the 12th International Congress on Nursing Informatics, NI 2014
PublisherIOS Press
Pages418-424
Number of pages7
ISBN (Print)9781614994145
DOIs
StatePublished - Jan 1 2014
Event12th International Congress on Nursing Informatics: East Meets West eSMART+, NI 2014 - Taipei, Taiwan, Province of China
Duration: Jun 21 2014Jun 25 2014

Publication series

NameStudies in Health Technology and Informatics
Volume201
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Other

Other12th International Congress on Nursing Informatics: East Meets West eSMART+, NI 2014
CountryTaiwan, Province of China
CityTaipei
Period6/21/146/25/14

Keywords

  • HIV
  • electronic health record
  • health information exchange
  • informed consent
  • workflow

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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  • Cite this

    Ramos, S. R., & Bakken, S. (2014). Qualitative study of patient consent for health information exchange in an HIV clinic. In Nursing Informatics 2014: East Meets West eSMART+ - Proceedings of the 12th International Congress on Nursing Informatics, NI 2014 (pp. 418-424). (Studies in Health Technology and Informatics; Vol. 201). IOS Press. https://doi.org/10.3233/978-1-61499-415-2-418