Psychosocial Response to New-Onset Diabetes as a Long-Term Effect of Allogeneic Hematopoietic Stem Cell Transplantation

Jill M. Olausson, Lauren Clark, Janice M. Morse, Marilyn Hammer, Nancy Allen, Marcia Grant

Research output: Contribution to journalArticle

Abstract

Currently, little information is available to guide health care practitioners on how to facilitate positive outcomes in individuals who develop new-onset diabetes after allogeneic hematopoietic stem cell transplantation (allo HSCT) for treatment of hematological cancers. Results from this constructivist grounded theory study provide a theoretical framework explaining the psychosocial process of change that middle-age and older adults experience when developing new-onset diabetes in this context. Two predominant factors influenced this change: treatment burden and perception of diabetes. Key findings were that participants with ongoing complications, primarily graft-versus-host disease, experienced a high degree of treatment-related burden and unclear perceptions of diabetes when compared with those with no or few post-allo-HSCT complications. These factors limited their capacity to positively respond to and self-manage their condition. Implications for practice are to thoroughly consider these two factors when developing patient-centered interventions for middle-age and older adults with new-onset diabetes after allo HSCT.

Original languageEnglish (US)
Pages (from-to)1816-1827
Number of pages12
JournalQualitative Health Research
Volume27
Issue number12
DOIs
StatePublished - Oct 1 2017

Fingerprint

Hematopoietic Stem Cell Transplantation
Graft vs Host Disease
Therapeutics
Delivery of Health Care
Neoplasms

Keywords

  • allogeneic hematopoietic stem cell transplantation
  • cancer
  • chronic illness and disease, experiences
  • diabetes
  • grounded theory, constructivist
  • middle age
  • older people
  • qualitative
  • research
  • United States

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

Psychosocial Response to New-Onset Diabetes as a Long-Term Effect of Allogeneic Hematopoietic Stem Cell Transplantation. / Olausson, Jill M.; Clark, Lauren; Morse, Janice M.; Hammer, Marilyn; Allen, Nancy; Grant, Marcia.

In: Qualitative Health Research, Vol. 27, No. 12, 01.10.2017, p. 1816-1827.

Research output: Contribution to journalArticle

Olausson, Jill M. ; Clark, Lauren ; Morse, Janice M. ; Hammer, Marilyn ; Allen, Nancy ; Grant, Marcia. / Psychosocial Response to New-Onset Diabetes as a Long-Term Effect of Allogeneic Hematopoietic Stem Cell Transplantation. In: Qualitative Health Research. 2017 ; Vol. 27, No. 12. pp. 1816-1827.
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