PETS-D (parents education through simulation-diabetes)

Parents' qualitative results

Neesha Ramchandani, Laura L. Maguire, Kailyn Stern, Jose B. Quintos, Mary Lee, Susan Sullivan-Bolyai

Research output: Contribution to journalArticle

Abstract

Objective: Parents who have a child newly diagnosed with type 1 diabetes (T1D) must quickly learn daily diabetes self-management. An RCT was conducted using human patient simulation (HPS) to enhance parents learning diabetes self-management with children with new-onset T1D. The purpose of this study was to describe parents' perspectives of using HPS to augment diabetes education. Methods: A qualitative descriptive design was used with open-ended in-depth interviews of parents (n = 49) post-intervention. Qualitative directed content analysis was used. Results: The majority of parents were positive about learning with HPS. Although a few parents said the HPS was "hokey" or "creepy," most reported the visual and hands-on learning was realistic and very beneficial. Seeing a seizure increased their fear although they would have panicked if they had not had that learning experience, and it helped build their diabetes self-management confidence. Recommendations included teaching others with the HPS (grandparents, siblings, babysitters, and school nurses). Conclusion: HPS-enhanced education is an acceptable and viable option that was generally well-received by parents of children with new-onset T1D. Practice implications: The technique should be studied with parents of children with other chronic illnesses to see if the benefits found in this study are applicable to other settings.

Original languageEnglish (US)
JournalPatient Education and Counseling
DOIs
StateAccepted/In press - Oct 3 2015

Fingerprint

Patient Simulation
Parents
Education
Self Care
Type 1 Diabetes Mellitus
Learning
Fear
Siblings
Teaching
Seizures
Chronic Disease
Nurses
Interviews

Keywords

  • HPS
  • Parent education
  • Simulation
  • Type 1 diabetes
  • Vignette

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Ramchandani, N., Maguire, L. L., Stern, K., Quintos, J. B., Lee, M., & Sullivan-Bolyai, S. (Accepted/In press). PETS-D (parents education through simulation-diabetes): Parents' qualitative results. Patient Education and Counseling. https://doi.org/10.1016/j.pec.2016.03.019

PETS-D (parents education through simulation-diabetes) : Parents' qualitative results. / Ramchandani, Neesha; Maguire, Laura L.; Stern, Kailyn; Quintos, Jose B.; Lee, Mary; Sullivan-Bolyai, Susan.

In: Patient Education and Counseling, 03.10.2015.

Research output: Contribution to journalArticle

Ramchandani, Neesha ; Maguire, Laura L. ; Stern, Kailyn ; Quintos, Jose B. ; Lee, Mary ; Sullivan-Bolyai, Susan. / PETS-D (parents education through simulation-diabetes) : Parents' qualitative results. In: Patient Education and Counseling. 2015.
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