Part II: A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers

Elena Byhoff, Emilia H. De Marchis, Danielle Hessler, Caroline Fichtenberg, Nancy Adler, Alicia J. Cohen, Kelly M. Doran, Stephanie Ettinger de Cuba, Eric W. Fleegler, Nicholas Gavin, Amy G. Huebschmann, Stacy Tessler Lindau, Elizabeth L. Tung, Maria Raven, Susan Jepson, Wendy Johnson, Ardis L. Olson, Megan Sandel, Richard S. Sheward, Laura M. Gottlieb

Research output: Contribution to journalArticle

Abstract

Introduction: This study aimed to better understand patient and caregiver perspectives on social risk screening across different healthcare settings. Methods: As part of a mixed-methods multisite study, the authors conducted semistructured interviews with a subset of adult patients and adult caregivers of pediatric patients who had completed the Center for Medicare and Medicaid Innovation Accountable Health Communities social risk screening tool between July 2018 and February 2019. Interviews, conducted in English or Spanish, asked about reactions to screening, screening acceptability, preferences for administration, prior screening experiences that informed perspectives, and expectations for social assistance. Basic thematic analysis and constant comparative methods were used to code and develop themes. Results: Fifty interviews were conducted across 10 study sites in 9 states, including 6 primary care clinics and 4 emergency departments. There was broad consensus among interviewees across all sites that social risk screening was acceptable. The following 4 main themes emerged: (1) participants believed screening for social risks is important; (2) participants expressed insight into the connections between social risks and overall health; (3) participants emphasized the importance of patient-centered implementation of social risk screening; and (4) participants recognized limits to the healthcare sector's capacity to address or resolve social risks. Conclusions: Despite gaps in the availability of social risk–related interventions in healthcare settings, patient-centered social risk screening, including empathy and attention to privacy, may strengthen relationships between patients and healthcare teams. Supplement information: This article is part of a supplement entitled Identifying and Intervening on Social Needs in Clinical Settings: Evidence and Evidence Gaps, which is sponsored by the Agency for Healthcare Research and Quality of the U.S. Department of Health and Human Services, Kaiser Permanente, and the Robert Wood Johnson Foundation.

Original languageEnglish (US)
Pages (from-to)S38-S46
JournalAmerican Journal of Preventive Medicine
Volume57
Issue number6
DOIs
StatePublished - Dec 2019

Fingerprint

Caregivers
Interviews
United States Agency for Healthcare Research and Quality
United States Dept. of Health and Human Services
Delivery of Health Care
Patient Care Team
Health Care Sector
Privacy
Medicaid
Health
Medicare
Hospital Emergency Service
Primary Health Care
Consensus
Pediatrics

ASJC Scopus subject areas

  • Epidemiology
  • Public Health, Environmental and Occupational Health

Cite this

Byhoff, E., De Marchis, E. H., Hessler, D., Fichtenberg, C., Adler, N., Cohen, A. J., ... Gottlieb, L. M. (2019). Part II: A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers. American Journal of Preventive Medicine, 57(6), S38-S46. https://doi.org/10.1016/j.amepre.2019.07.016

Part II : A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers. / Byhoff, Elena; De Marchis, Emilia H.; Hessler, Danielle; Fichtenberg, Caroline; Adler, Nancy; Cohen, Alicia J.; Doran, Kelly M.; Ettinger de Cuba, Stephanie; Fleegler, Eric W.; Gavin, Nicholas; Huebschmann, Amy G.; Lindau, Stacy Tessler; Tung, Elizabeth L.; Raven, Maria; Jepson, Susan; Johnson, Wendy; Olson, Ardis L.; Sandel, Megan; Sheward, Richard S.; Gottlieb, Laura M.

In: American Journal of Preventive Medicine, Vol. 57, No. 6, 12.2019, p. S38-S46.

Research output: Contribution to journalArticle

Byhoff, E, De Marchis, EH, Hessler, D, Fichtenberg, C, Adler, N, Cohen, AJ, Doran, KM, Ettinger de Cuba, S, Fleegler, EW, Gavin, N, Huebschmann, AG, Lindau, ST, Tung, EL, Raven, M, Jepson, S, Johnson, W, Olson, AL, Sandel, M, Sheward, RS & Gottlieb, LM 2019, 'Part II: A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers', American Journal of Preventive Medicine, vol. 57, no. 6, pp. S38-S46. https://doi.org/10.1016/j.amepre.2019.07.016
Byhoff, Elena ; De Marchis, Emilia H. ; Hessler, Danielle ; Fichtenberg, Caroline ; Adler, Nancy ; Cohen, Alicia J. ; Doran, Kelly M. ; Ettinger de Cuba, Stephanie ; Fleegler, Eric W. ; Gavin, Nicholas ; Huebschmann, Amy G. ; Lindau, Stacy Tessler ; Tung, Elizabeth L. ; Raven, Maria ; Jepson, Susan ; Johnson, Wendy ; Olson, Ardis L. ; Sandel, Megan ; Sheward, Richard S. ; Gottlieb, Laura M. / Part II : A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers. In: American Journal of Preventive Medicine. 2019 ; Vol. 57, No. 6. pp. S38-S46.
@article{3ccbd1abf26748deb6fbec2aab76191e,
title = "Part II: A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers",
abstract = "Introduction: This study aimed to better understand patient and caregiver perspectives on social risk screening across different healthcare settings. Methods: As part of a mixed-methods multisite study, the authors conducted semistructured interviews with a subset of adult patients and adult caregivers of pediatric patients who had completed the Center for Medicare and Medicaid Innovation Accountable Health Communities social risk screening tool between July 2018 and February 2019. Interviews, conducted in English or Spanish, asked about reactions to screening, screening acceptability, preferences for administration, prior screening experiences that informed perspectives, and expectations for social assistance. Basic thematic analysis and constant comparative methods were used to code and develop themes. Results: Fifty interviews were conducted across 10 study sites in 9 states, including 6 primary care clinics and 4 emergency departments. There was broad consensus among interviewees across all sites that social risk screening was acceptable. The following 4 main themes emerged: (1) participants believed screening for social risks is important; (2) participants expressed insight into the connections between social risks and overall health; (3) participants emphasized the importance of patient-centered implementation of social risk screening; and (4) participants recognized limits to the healthcare sector's capacity to address or resolve social risks. Conclusions: Despite gaps in the availability of social risk–related interventions in healthcare settings, patient-centered social risk screening, including empathy and attention to privacy, may strengthen relationships between patients and healthcare teams. Supplement information: This article is part of a supplement entitled Identifying and Intervening on Social Needs in Clinical Settings: Evidence and Evidence Gaps, which is sponsored by the Agency for Healthcare Research and Quality of the U.S. Department of Health and Human Services, Kaiser Permanente, and the Robert Wood Johnson Foundation.",
author = "Elena Byhoff and {De Marchis}, {Emilia H.} and Danielle Hessler and Caroline Fichtenberg and Nancy Adler and Cohen, {Alicia J.} and Doran, {Kelly M.} and {Ettinger de Cuba}, Stephanie and Fleegler, {Eric W.} and Nicholas Gavin and Huebschmann, {Amy G.} and Lindau, {Stacy Tessler} and Tung, {Elizabeth L.} and Maria Raven and Susan Jepson and Wendy Johnson and Olson, {Ardis L.} and Megan Sandel and Sheward, {Richard S.} and Gottlieb, {Laura M.}",
year = "2019",
month = "12",
doi = "10.1016/j.amepre.2019.07.016",
language = "English (US)",
volume = "57",
pages = "S38--S46",
journal = "American Journal of Preventive Medicine",
issn = "0749-3797",
publisher = "Elsevier Inc.",
number = "6",

}

TY - JOUR

T1 - Part II

T2 - A Qualitative Study of Social Risk Screening Acceptability in Patients and Caregivers

AU - Byhoff, Elena

AU - De Marchis, Emilia H.

AU - Hessler, Danielle

AU - Fichtenberg, Caroline

AU - Adler, Nancy

AU - Cohen, Alicia J.

AU - Doran, Kelly M.

AU - Ettinger de Cuba, Stephanie

AU - Fleegler, Eric W.

AU - Gavin, Nicholas

AU - Huebschmann, Amy G.

AU - Lindau, Stacy Tessler

AU - Tung, Elizabeth L.

AU - Raven, Maria

AU - Jepson, Susan

AU - Johnson, Wendy

AU - Olson, Ardis L.

AU - Sandel, Megan

AU - Sheward, Richard S.

AU - Gottlieb, Laura M.

PY - 2019/12

Y1 - 2019/12

N2 - Introduction: This study aimed to better understand patient and caregiver perspectives on social risk screening across different healthcare settings. Methods: As part of a mixed-methods multisite study, the authors conducted semistructured interviews with a subset of adult patients and adult caregivers of pediatric patients who had completed the Center for Medicare and Medicaid Innovation Accountable Health Communities social risk screening tool between July 2018 and February 2019. Interviews, conducted in English or Spanish, asked about reactions to screening, screening acceptability, preferences for administration, prior screening experiences that informed perspectives, and expectations for social assistance. Basic thematic analysis and constant comparative methods were used to code and develop themes. Results: Fifty interviews were conducted across 10 study sites in 9 states, including 6 primary care clinics and 4 emergency departments. There was broad consensus among interviewees across all sites that social risk screening was acceptable. The following 4 main themes emerged: (1) participants believed screening for social risks is important; (2) participants expressed insight into the connections between social risks and overall health; (3) participants emphasized the importance of patient-centered implementation of social risk screening; and (4) participants recognized limits to the healthcare sector's capacity to address or resolve social risks. Conclusions: Despite gaps in the availability of social risk–related interventions in healthcare settings, patient-centered social risk screening, including empathy and attention to privacy, may strengthen relationships between patients and healthcare teams. Supplement information: This article is part of a supplement entitled Identifying and Intervening on Social Needs in Clinical Settings: Evidence and Evidence Gaps, which is sponsored by the Agency for Healthcare Research and Quality of the U.S. Department of Health and Human Services, Kaiser Permanente, and the Robert Wood Johnson Foundation.

AB - Introduction: This study aimed to better understand patient and caregiver perspectives on social risk screening across different healthcare settings. Methods: As part of a mixed-methods multisite study, the authors conducted semistructured interviews with a subset of adult patients and adult caregivers of pediatric patients who had completed the Center for Medicare and Medicaid Innovation Accountable Health Communities social risk screening tool between July 2018 and February 2019. Interviews, conducted in English or Spanish, asked about reactions to screening, screening acceptability, preferences for administration, prior screening experiences that informed perspectives, and expectations for social assistance. Basic thematic analysis and constant comparative methods were used to code and develop themes. Results: Fifty interviews were conducted across 10 study sites in 9 states, including 6 primary care clinics and 4 emergency departments. There was broad consensus among interviewees across all sites that social risk screening was acceptable. The following 4 main themes emerged: (1) participants believed screening for social risks is important; (2) participants expressed insight into the connections between social risks and overall health; (3) participants emphasized the importance of patient-centered implementation of social risk screening; and (4) participants recognized limits to the healthcare sector's capacity to address or resolve social risks. Conclusions: Despite gaps in the availability of social risk–related interventions in healthcare settings, patient-centered social risk screening, including empathy and attention to privacy, may strengthen relationships between patients and healthcare teams. Supplement information: This article is part of a supplement entitled Identifying and Intervening on Social Needs in Clinical Settings: Evidence and Evidence Gaps, which is sponsored by the Agency for Healthcare Research and Quality of the U.S. Department of Health and Human Services, Kaiser Permanente, and the Robert Wood Johnson Foundation.

UR - http://www.scopus.com/inward/record.url?scp=85075023453&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85075023453&partnerID=8YFLogxK

U2 - 10.1016/j.amepre.2019.07.016

DO - 10.1016/j.amepre.2019.07.016

M3 - Article

C2 - 31753278

AN - SCOPUS:85075023453

VL - 57

SP - S38-S46

JO - American Journal of Preventive Medicine

JF - American Journal of Preventive Medicine

SN - 0749-3797

IS - 6

ER -