Nurses' perspectives: Hospitalized older patients and end-of-life decision-making

Judy Dillworth, Victoria Vaughan Dickson, Anna Mueller, Joseph Shuluk, Hye W. Yoon, Elizabeth Capezuti

Research output: Contribution to journalArticle

Abstract

Aims: To explore pressing issues identified by nurses caring for older patients in US NICHE (Nurses Improving Care for the Healthsystem Elders) hospitals, regarding palliative care and end-of-life (EOL) decision-making. Objectives are to (1) identify the most pressing palliative care and EOL decision-making issues and strategies to address them and (2) identify the association of nursing demographics (age, gender, race, education and experience), institutional/unit characteristics and these issues. Background: Critical care nurses have an integral role in supporting older patients and families faced with palliative care and EOL decision-making issues. Despite national imperatives to improve the quality of palliative care, patients continue to experience uncontrolled pain, inadequate communication, disregard of their wishes and life prolonging interventions. These contribute to increased hospitalizations and costs. Understanding the prevalent issues is needed to address patient needs at the end-of-life. Design: It is a mixed method study. Methods: A secondary analysis of the NICHE Geriatric Institutional Assessment Profile (GIAP) database (collected 1/08-9/13) was conducted using the sample of Critical Care RNs who provided comments regarding palliative care and EOL decision-making. Qualitative data were analyzed using Dedoose software. Data clusters and patterns of co-occurring codes were explored through an iterative analysis process. Themes were examined across nurse demographics, institutional and unit characteristics. Results: Comments specifically addressing issues regarding EOL decision-making were provided by 393 critical care nurses from 156 hospitals ( age = 42·3 years, 51% BSN degree). Overarching theme was discordance in goals of care (prolonging life versus quality of life), ineffective physician-patient-family communication, lack of time and unrealistic expectations. Conclusions: Nurses' descriptions highlight the need for increased communication, staff education and availability of palliative care services. Relevance to Practice: Palliative care and EOL decision-making will remain a nursing priority as people age and require increased care.

Original languageEnglish (US)
Pages (from-to)e1-e11
JournalNursing in critical care
Volume21
Issue number2
DOIs
StatePublished - Mar 1 2016

Fingerprint

Palliative Care
Decision Making
Nurses
Critical Care
Communication
Nursing
Quality of Life
Demography
Patient Care Planning
Geriatric Assessment
Education
Quality of Health Care
Family Physicians
Hospitalization
Software
Databases
Costs and Cost Analysis
Pain

Keywords

  • Adult intensive care
  • Intensive care
  • Nurses
  • Older adults
  • Qualitative research
  • Quality of life

ASJC Scopus subject areas

  • Critical Care

Cite this

Nurses' perspectives : Hospitalized older patients and end-of-life decision-making. / Dillworth, Judy; Vaughan Dickson, Victoria; Mueller, Anna; Shuluk, Joseph; Yoon, Hye W.; Capezuti, Elizabeth.

In: Nursing in critical care, Vol. 21, No. 2, 01.03.2016, p. e1-e11.

Research output: Contribution to journalArticle

Dillworth, Judy ; Vaughan Dickson, Victoria ; Mueller, Anna ; Shuluk, Joseph ; Yoon, Hye W. ; Capezuti, Elizabeth. / Nurses' perspectives : Hospitalized older patients and end-of-life decision-making. In: Nursing in critical care. 2016 ; Vol. 21, No. 2. pp. e1-e11.
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abstract = "Aims: To explore pressing issues identified by nurses caring for older patients in US NICHE (Nurses Improving Care for the Healthsystem Elders) hospitals, regarding palliative care and end-of-life (EOL) decision-making. Objectives are to (1) identify the most pressing palliative care and EOL decision-making issues and strategies to address them and (2) identify the association of nursing demographics (age, gender, race, education and experience), institutional/unit characteristics and these issues. Background: Critical care nurses have an integral role in supporting older patients and families faced with palliative care and EOL decision-making issues. Despite national imperatives to improve the quality of palliative care, patients continue to experience uncontrolled pain, inadequate communication, disregard of their wishes and life prolonging interventions. These contribute to increased hospitalizations and costs. Understanding the prevalent issues is needed to address patient needs at the end-of-life. Design: It is a mixed method study. Methods: A secondary analysis of the NICHE Geriatric Institutional Assessment Profile (GIAP) database (collected 1/08-9/13) was conducted using the sample of Critical Care RNs who provided comments regarding palliative care and EOL decision-making. Qualitative data were analyzed using Dedoose software. Data clusters and patterns of co-occurring codes were explored through an iterative analysis process. Themes were examined across nurse demographics, institutional and unit characteristics. Results: Comments specifically addressing issues regarding EOL decision-making were provided by 393 critical care nurses from 156 hospitals ( age = 42·3 years, 51{\%} BSN degree). Overarching theme was discordance in goals of care (prolonging life versus quality of life), ineffective physician-patient-family communication, lack of time and unrealistic expectations. Conclusions: Nurses' descriptions highlight the need for increased communication, staff education and availability of palliative care services. Relevance to Practice: Palliative care and EOL decision-making will remain a nursing priority as people age and require increased care.",
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