Great expectations: a position description for parents as caregivers: Part I.

Susan Sullivan-Bolyai, Lois Sadler, Kathleen A. Knafl, Catherine L. Gilliss

Research output: Contribution to journalArticle

Abstract

Parents caring for a child with a chronic condition must attend to a myriad of day-to-day management responsibilities and activities. This two-part series examines parental roles and responsibilities in detail. Part I will review both the adult and pediatric family caregiving literature. It will also describe four major caregiving responsibilities with associated tasks in both direct and indirect illness-related care, which parents are expected to perform when caring for a child with a chronic condition. These are: (a) managing the illness; (b) identifying, accessing, and coordinating resources; (c) maintaining the family unit; and (d) maintaining self. Part II (to be published in the next issue of Pediatric Nursing) will present a multifaceted list of parent caregiving management responsibilities and associated activities drawn from the literature. Clinical nursing implications associated with caregiver responsibilities and tasks will also be addressed.

Original languageEnglish (US)
Pages (from-to)457-461
Number of pages5
JournalPediatric nursing
Volume29
Issue number6
Publication statusPublished - 2003

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Sullivan-Bolyai, S., Sadler, L., Knafl, K. A., & Gilliss, C. L. (2003). Great expectations: a position description for parents as caregivers: Part I. Pediatric nursing, 29(6), 457-461.