Constant vigilance

Mothers' work parenting young children with type 1 diabetes

Susan Sullivan-Bolyai, J. Deatrick, P. Gruppuso, W. Tamborlane, M. Grey

Research output: Contribution to journalArticle

Abstract

Little is known about the experiences of mothers raising young children with type 1 diabetes. The purpose of this study was to describe the day-to-day experiences of mothers (N = 28) raising young children under 4 years of age with type 1 diabetes. Descriptive, naturalistic inquiry principles were used to interview subjects, as well as to manage and analyze the data. The mothers reported using the management behavior of constant vigilance. Their concerns about hypoglycemia and providing competent care reflected the interplay between their fears and profound sense of responsibility for managing the disease. Mothers reported having to learn the management behaviors and to occasionally adjust the day-to-day management when either severe hypoglycemia or developmental milestones occurred. Although mothers initially had feelings of incompetence with the care they provided, with time, they became very skilled. There were also reports of limited access to babysitting, child care, or respite services. The intensity of their constant vigilance associated with their concerns, responsibility, and lack of supports resulted in some mothers having physical and/or emotional problems. The findings of the study highlight the importance of identifying family and/or community resources that may provide mothers with support that could reduce some of the tremendous stress and burden of responsibility experienced after diagnosis of diabetes.

Original languageEnglish (US)
Pages (from-to)21-29
Number of pages9
JournalJournal of Pediatric Nursing
Volume18
Issue number1
DOIs
StatePublished - Feb 2003

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Parenting
Type 1 Diabetes Mellitus
Mothers
Hypoglycemia
Child Care
Fear
Emotions
Interviews

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Nursing(all)

Cite this

Sullivan-Bolyai, S., Deatrick, J., Gruppuso, P., Tamborlane, W., & Grey, M. (2003). Constant vigilance: Mothers' work parenting young children with type 1 diabetes. Journal of Pediatric Nursing, 18(1), 21-29. https://doi.org/10.1053/jpdn.2003.4

Constant vigilance : Mothers' work parenting young children with type 1 diabetes. / Sullivan-Bolyai, Susan; Deatrick, J.; Gruppuso, P.; Tamborlane, W.; Grey, M.

In: Journal of Pediatric Nursing, Vol. 18, No. 1, 02.2003, p. 21-29.

Research output: Contribution to journalArticle

Sullivan-Bolyai, S, Deatrick, J, Gruppuso, P, Tamborlane, W & Grey, M 2003, 'Constant vigilance: Mothers' work parenting young children with type 1 diabetes', Journal of Pediatric Nursing, vol. 18, no. 1, pp. 21-29. https://doi.org/10.1053/jpdn.2003.4
Sullivan-Bolyai, Susan ; Deatrick, J. ; Gruppuso, P. ; Tamborlane, W. ; Grey, M. / Constant vigilance : Mothers' work parenting young children with type 1 diabetes. In: Journal of Pediatric Nursing. 2003 ; Vol. 18, No. 1. pp. 21-29.
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