Blending genetics and sociocultural historical inquiry: Ethics, culture, and human subjects protection in international cross cultural research

Deborah A. Sampson, Dennis Caldwell, Andre Taylor, Jacquelyn Taylor

Research output: Contribution to journalArticle

Abstract

In this paper, we examine the implementation and difficulties when conducting genetics research in a rural, traditional West African culture within the frame of the United States' grounded research ethics. Research challenges are highlighted by Western researchers following U.S. Institutional Review Board (IRB†) guidelines and practices in a non-Western country. IRB concepts are culture bound in Western ideals that may not have synchronicity and compatibility with non-Western cultures. Differences in sociocultural norms, traditions, language, and geography were influencing factors that can affect application of IRB principles. Suggestions for change are offered, which will potentially aid researchers considering application of IRB requirements when conducting research in non-Westernized, non-industrialized countries.

Original languageEnglish (US)
Pages (from-to)89-98
Number of pages10
JournalYale Journal of Biology and Medicine
Volume86
Issue number1
StatePublished - Mar 1 2013

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Research Ethics Committees
Ethics
Research
Research Personnel
Research Ethics
Genetic Research
Geography
Practice Guidelines
Language
Genetics

Keywords

  • Dogon
  • Ethics
  • Genetic
  • Institutional review boards
  • Mali

ASJC Scopus subject areas

  • Medicine(all)
  • Biochemistry, Genetics and Molecular Biology(all)

Cite this

Blending genetics and sociocultural historical inquiry : Ethics, culture, and human subjects protection in international cross cultural research. / Sampson, Deborah A.; Caldwell, Dennis; Taylor, Andre; Taylor, Jacquelyn.

In: Yale Journal of Biology and Medicine, Vol. 86, No. 1, 01.03.2013, p. 89-98.

Research output: Contribution to journalArticle

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